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Metas de Enfermería

Metas de Enfermería

SEPTIEMBRE 2019 N° 7 Volumen 22

Reaction of family caregivers for patients with dementia regarding home care vs. institutionalized care

Section: Originals

How to quote

Alvira-Balada MC, Kostov B, Miguel-González S, Farré-Almacellas M, Risco-Vilarasau E, Cabrera-Torres E, et al. Reacción del cuidador familiar de paciente con demencia en la atención domiciliaria frente a la institucionalizada. Metas Enferm sep 2019; 22(7):5-14.

Authors

Mª Carmen Alvira Balada1, Belchin Kostov2, Susana Miguel González3, Marta Farré Almacellas4,Ester Risco Vilarasau5, Esther Cabrera Torres6, Adelaida Zabalegui Yarnoz7

Position

1Doctora en Ciencias de la Salud por la Universidad Jaume I de Castelló. Departamento de Enfermería. Centro de Atención Primaria Borrell. Instituto de Investigaciones Biomédicas August Pi i Sunyer (IDIBAPS). Hospital Universitario Clínic de Barcelona2Doctor en Estadística por la Universidad de Barcelona. Grupo de Recerca Transversal en Atención Primaria. IDIBAPS. Hospital Universitario Clínic de Barcelona 3Doctora en Ciencias de la Salud por la Universidad Jaume I de Castelló. Escuela de Ciencias de la Salud. Universidad Autónoma de Barcelona 4Doctora en Ciencias de la Salud por la Universidad de Barcelona. Departamento de Enfermería. Hospital Universitario Clínic de Barcelona5Doctora en Ciencias de la Salud por la Universidad de Barcelona. Departamento de Enfermería. Hospital Universitario Clínic de Barcelona. Universidad de Barcelona 6Doctora en Ciencias de la Salud por la Universidad Internacional de Cataluña. Escuela de Ciencias de la Salud. TecnoCampus, Universidad Pompeu Fabra. Barcelona7Doctora en Enfermería por la New York University. Dirección de Enfermería. Hospital Universitario Clínic de Barcelona. Universidad de Barcelona

Contact address

Adelaida Zabalegui Yarnoz. Hospital Clínic de Barcelona. C/ Villarroel, 170. 08036 Barcelona.

Contact email: azabaleg@clinic.cat

Abstract

Objective: to identify the reactions of family caregivers for patients with dementia regarding their care in the home setting vs. care conducted in the long-term institutionalized setting; and to study their evolution at 3 months.
Method: a prospective analytical observational cohort study in patients with dementia and their family caregivers (n= 287) who live at home (PDD) or in long-stay centers (PDI), and who answered the validated questionnaire Caregiver Reaction Assessment (CRA). Statistical treatment: t test for paired samples, t test for independent samples, and Wilcoxon signed-rank test. This study is part of the European project RightTimePlaceCare (RTPC).
Results: the study included 241 family caregivers of PDD (n= 155) and PDI (n= 86). In the CRA sub-scales at baseline, those in the PDD arm had less support by their families (11 vs. 13; p= 0.006), higher interference in daily life activities (DLA) due to their caregiving (16 vs. 18; p= 0.020), and they considered there was a lower impact of care on their economy vs. the PDI arm (10 vs. 7; p< 0.001). There was a slight improvement in the PDD arm regarding DLA interferences (18 at baseline vs. 17 at follow-up; p= 0.041).
Conclusion: in terms of the reactions of those who care for dementia patients, the highest impact occurs in daily life interferences for home caregivers, and at 3 months of follow-up there is an improvement in this dimension. Moreover, when the patient with dementia becomes institutionalized, there is higher family support for the caregiver. These results provide the keys for healthcare professionals to focus their care on the physical, psychological and social health of caregivers.

Keywords:

caregivers; dementia; family relationships; elderly person; home healthcare; health of the institutionalized elderly person; longitudinal studies; RightTimePlaceCare

Versión en Español

Título:

Reacción del cuidador familiar de paciente con demencia en la atención domiciliaria frente a la institucionalizada

Artículo completo no disponible en este idioma / Full article is not available in this language

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