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Metas de Enfermería

Metas de Enfermería

MAYO 2020 N° 4 Volumen 23

INFOSA-DEM: a programme targeted to caregivers of persons with dementia

Section: Originals

How to quote

Frías-Torres CE, García-Pascual M, Solbes-Pina E, Jordi-Ferran T, Torrero-Capilla I, Risco-Vilarasau E, et al. infosa-dem: programa dirigido a figuras cuidadoras de personas con demencia. Metas Enferm may 2020; 23(4):16-24. Doi: https://doi.org/10.35667/ MetasEnf.2019.23.1003081581

Authors

Cindy E. Frías-Torres1, Marta García-Pascual2, Estela Solbes-Pina3, Teresa Jordi-Ferran4, Irene Torrero-Capilla5, Ester Risco-Vilarasau6, Ana Mª Rodríguez-Lavandeira7, Elisabeth Calvo-Fernández8, Adelaida Zabalegui9

Position

1Especialista en Salud Mental. Máster en Investigación en Salud Mental. PhD (c) en Ciencias de la Enfermería. Hospital Clínic de Barcelona2Máster en Ciencias de la Enfermería. Hospital Clínic de Barcelona3Máster de SIDA. Hospital Clínic de Barcelona4Máster en Psicogeriatría. Hospital Clínic de Barcelona5Máster en Cuidados en la Atención Primaria. Postgrado en Paciente Crónico. Hospital Clínic de Barcelona6Doctora en Enfermería. Parc Sanitari Pere i Virgili. Barcelona7Máster en Enfermería Gerontológica. Postgrado en psicogeriatría. Sociosanitario de Mollet. Barcelona8Máster en Enfermería Gerontológica y Geriátrica. Postgrado en Atención Enfermera en Cuidados Paliativos. Postgrado en psicogeriatría. Parc Sanitari Pere i Virgili. Barcelona9Doctora en Enfermería. Subdirectora de Investigación en Enfermería. Hospital Clínic de Barcelona

Contact address

Adelaida Zabalegui. Hospital Clínic de Barcelona. C/ Villarroel, 170. 08036 Barcelona

Contact email: azabaleg@clinic.cat

Abstract

Objective: to evaluate the impact of the  Information, Training and Social Support programme for caregivers of persons with dementia (INFOSA-DEM) in terms of emotional wellbeing, evaluating the duration of the effect of the program at three and six months after the intervention.
Method: a multicenter and non-randomized study was conducted, with quasi-experimental design, and with an Intervention Arm (IA) and a Control Arm (CA). Participants were allocated to IA or CA though non-probabilistic sample, with intentional allocation, taking into account the availability of the caregivers to attend the sessions of the programme designed. Data were collected through personal interviews with the caregiver at the home of the person with dementia, before the intervention and at three and six months of follow-up. Emotional wellbeing and quality of life variables were collected, among others. Descriptive and comparative analysis was conducted at the three points of measurement.
Results: the study included 160 caregivers, 74 in the CA and 86 in the IA. At three months, a positive effect was observed in the emotional wellbeing of the Intervention Arm, vs. a slight negative effect among Control participants. Taking into account all three visits, it was confirmed that the improvement in the dimension health associated with the emotional wellbeing of caregivers in the Intervention Arm was sustained even after six months; however, differences were not statistically significant.
Conclusion: educational programs targeted to informal caregivers and based on psychoeducational therapies and cognitive-behavioural theories seem to have positive effects in terms of an improvement in the emotional wellbeing of caregivers, and there is an improvement in the quality of the caregiver role.

Keywords:

caregivers; dementia; emotional wellbeing; nursing

Versión en Español

Título:

INFOSA-DEM: programa dirigido a figuras cuidadoras de personas con demencia

Artículo completo no disponible en este idioma / Full article is not available in this language

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