Adaptation of the “Expectations and Knowledge Received in the Hospitalized Patient” Score to the setting of patients on dialysis
Section: Originals
How to quote
Reyes-Mina E, Cahuancama-Solano E, Zabalegui A. Adaptación de la escala Expectativas de Conocimiento del Paciente Hospitalizado al contexto del paciente en diálisis. Metas Enferm jul/ago 2020; 23(6):14-26. Doi: https://doi.org/10.35667/MetasEnf.2019.23.10030 81614
Authors
Ebling Reyes-Mina1, Elena Cahuancama-Solano2, Adelaida Zabalegui3
Position
1Enfermera. Equipo de complemento. Hospital Clínic de Barcelona2Enfermera. Instituto de Nefrología y Urología. Hospital Clínic de Barcelona3Doctora en Enfermería por la New York University. Dirección de Enfermería. Hospital Clínic de Barcelona. Miembro de la Junta de la Campaña Nursing Now
Contact address
Ebling Reyes Mina. Equipo de complemento. Hospital Clínic de Barcelona. Carrer de Villarroel, 170. 08036 Barcelona.
Contact email: reyes@clinic.cat
Abstract
Objective: to prepare the adaptation of the Spanish version of the “Expectations and Knowledge Received in the Hospitalized Patient” score to the setting of patients on dialysis.
Method: a descriptive cross-sectional study conducted in 2015. The study participants were all >18-year-old patients on hemodialysis or peritoneal dialysis from the Hospital Clínic of Barcelona. For scale adaptation, an appearance and contents validation was conducted, as well as test-retest and a pilot study. The internal consistency of the scale was analyzed by estimating its Cronbach’s alpha coefficient.
Results: five new items were included to the original scale, thus creating a 45-item instrument formed by six dimensions: biophysical, functional, experiential, ethical, social and financial. The pilot study included 80 subjects. The internal consistency of the “Expectations for Knowledge in Patients on Dialysis” scale (ECPD) for this pilot study presented for each one of the dimensions a Cronbach’s alpha coefficient ranging between 0.727 and 0.924.
Conclusions: the scale adapted to patients on dialysis (ECPD) has shown good validity in appearance and contents, and reliability over time. The internal consistency in the pilot study reports that this could be a useful and reliable scale, pending confirmation through construct validity.
Keywords:
health education; knowledge; empowerment; dialysis; validation
Versión en Español
Título:
Artículo completo no disponible en este idioma / Full article is not available in this language
Bibliography
- Sanidad CDE, Ccaa DELAS. Documento Marco sobre Enfermedad Renal Crónica ( ERC ) dentro de la Estrategia de Abordaje a la Cronicidad en el SNS. Madrid: Ministerio de Sanidad, Servicios Sociales e Igualdad; 2015 p. 1-55.
- Martínez Candela J, González JS, García Soidán FJ, Millaruelo Trillo JM, Díez Espino J, Bordonaba Bosque D, et al. Enfermedad renal crónica en España: prevalencia y factores relacionados en personas con diabetes mellitus mayores de 64 años. Nefrología [internet] 2018 [citado 8 jun 2020]; 28(4):401-13. Disponible en: http://linkinghub.elsevier.com/retrieve/pii/S0211699518300110
- Zamora I, Sanahuja MJ. Enfermedad renal crónica. Protocolos Diagnóstico-Terapéuticos de la Asociación Española de Pediatría (AEP). Madrid: AEP; 2008.
- Santillán Torres Torija C. Diseño, implementación y evaluación de un programa de intervención educativa para pacientes con insuficiencia renal crónica. Lat Am J Behav Med. 2010;1:37-46.
- Prieto M, Escudero MJ, Suess A, March JC, Ruiz A, Danet A. Análisis de calidad percibida y expectativas de pacientes en el proceso asistencial de diálisis. An Sist Sanit Navar. 2011; 34(1):21-31.
- Organización Nacional de Trasplantes. Informe de Diálisis y Trasplante 2014. XLV Congreso Nacional de la Sociedad Española de Nefrología; 2015.
- De las Heras MT, Martínez C. Conocimiento y percepción nutricional en diálisis: su influencia en la transgresión y adherencia; estudio inicial. Nutr Hosp. 2015; 31(3):1366-75.
- Gilbert T. Nursing: empowerment and the problem of power. J Adv Nurs. 1995; 21(5):865-71.
- Gibson CH. A concept analysis of empowerment. J Adv Nurs. 1991; 16(3):354-61.
- Mazzoni D, Cicognani E, Laghi M, Sgarlato V, Mosconi G. Patients’ direction, empowerment and quality of life in haemodialysis. Psychol Health Med [internet] 2013 [citado 8 jun 2020]; (April 2014):37-41. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/24215533
- Virtanen H, Leino-Kilpi H, Salanterä S. Empowering discourse in patient education. Patient Education and Counseling. 2007. p. 140-6.
- Banduara A. Self-efficacy: Toward a Unufying Theory of Behavioral Change. Psychol Rev. California: Psychological Review 1977; 84(2):191-215.
- Moattari M, Ebrahimi M, Sharifi N, Rouzbeh J. The effect of empowerment on the self-efficacy, quality of life and clinical and laboratory indicators of patients treated with hemodialysis: a randomized controlled trial. Health Qual Life Outcomes. 2012; 10(1):115.
- Anderson RM, Funnell MM. Patient Empowerment: Myths and Misconceptions Robert. Patient Educ Coun. 2011; 79(3):277-82.
- Rappaport J. Studies in Empowerment. Prev Hum Serv.Taylor & Francis 7 de mayo de 1984; 3(2-3):1-7. Doi: http://dx.doi.org/10.1300/J293v03n02_02
- Coulter A, Ellins J. Effectiveness of strategies for informing, educating, and involving patients. BMJ Br Med J [internet]. 2007 [citado 8 jun 2020]; 335(7609):24-7. Disponible en: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1910640/
- Merlo MT. Manual de accesos vasculares para hemodiálisis. Madrid: SEDEN; 2012. 72 p.
- Colombo C, Moja L, González-Lorenzo M, Liberati A, Mosconi P. Patient empowerment as a component of health system reforms: Rights, benefits and vested interests. Intern Emerg Med. 2012; 7(2):183-7.
- Thomas-Hawkins C ZD. Self-management of chronic kidney disease. Am J Nurs. 2005; 105(10):48-9.
- Holmström I, Röing M. The relation between patient-centeredness and patient empowerment: A discussion on concepts. Patient Educ Couns. 2010; 79(2):167-72.
- Tsay S-L, Hung L-O. Empowerment of patients with end-stage renal disease-a randomized controlled trial. Int J Nurs Stud; 2015; 41(1):59-65. Doi: http://dx.doi.org/10.1016/S0020-7489(03)00095-6
- Wallerstein N. What is the evidence on effectiveness of empowerment to improve health? Report for the Health Evidence Network for World Health Organization [internet]. 2006 [citado 8 jun 2020]. Disponible en: http://www.ama.lu/docs/E88086.pdf
- Funnell MM, Anderson RM. Empowerment and Self-Management of Diabetes. Clin Diabetes. 2004; 22(3):123-7.
- Leino-Kilpi H, Maenpaa I, Katajisto J. Nursing study of the significance of rheumatoid arthritis as perceived by patients using the concept of empowerment. J Orthop Nurs [internet]. 1999 [citado 8 jun 2020]; 3(3):138-45. Disponible en: http://www.sciencedirect.com/science/article/pii/S136131119980051X
- Ellis-Stoll C, Popkess-Vawter S. A Concept Analysis on the Process of Empowerment. Wolters Kluwer Heal. 1998; 21(2):62-8.
- Valkeapa K, Klemetti S, Cabrera E, Cano S, Charalambous A, Copanitsanou BI. Knowledge expectations of surgical orthopaedic patients: A European survey. Int J Nurs Pract. 2014; 20:597-607.
- Rankinen S, Salanterä S, Heikkinen K, Johansson K, Kaljonen A, Virtanen H, et al. Expectations and received knowledge by surgical patients. Int J Qual Heal Care. 2007; 19(2):113-9.
- Heli VR, Helena LK, Liisa I, Kimmo L, Heikki M. Oncologic Patients’ Knowledge Expectations and Cognitive Capacities During Illness Trajectory: Analysis of Critical Moments and Factors. Holist Nurs Pract [internet]. 2015 [citado 8 jun 2020]; 29(4). Disponible en: http://journals.lww.com/hnpjournal/Fulltext/2015/07000/Oncologic_Patients__Knowledge_Expectations_and.8.aspx
- Rankinen S, Salanterä S, Heikkinen K, Johansson K, Kaljonen A, Virtanen H, et al. Expectations and received knowledge by surgical patients. Int J Qual Health Care [internet] 2007 [citado 8 jun 2020]; 19(2):113-9. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/17277008
- Rantanen M, Kallio T, Johansson K, Salanterä S, Virtanen H, Leino-Kilpi H. Knowledge expectations of patients on dialysis treatment. Nephrol Nurs J [internet]. 2008 [citado 8 jun 2020]; 35(3):249-55. Disponible en: http://www.ncbi.nlm.nih.gov/pubmed/18649585
- Sousa VD, Rojjanasrirat W. Translation, adaptation and validation of instruments or scales for use in cross-cultural health care research: a clear and user-friendly guideline. J Eval Clin Pract [internet]. 2011 [citado 8 jun 2020]; 17(2):268-74. Disponible en: http://doi.wiley.com/10.1111/j.1365-2753.2010.01434.x
- Leino-kilpi H. Cancer patients’ expectations regarding empowering knowledge and nurse advocacy in Finland and Spain. Clinical Nursing Studies. 2016; (April 2014).
- Cano-Plans S, Lacueva-Pérez L, Cabrera-Torres E, Zabalegui A. Validación de la versión española: Expectativa y conocimiento recibido del paciente hospitalizado. Aquichan [internet] 2017 [citado 8 jun 2020];17(3):292-304. Disponible en: http://aquichan.unisabana.edu.co/index.php/aquichan/article/view/5691/4596
- Escobar-Pérez J, Cuervo-Martínez Á. Validez de contenido y juicio de expertos: una aproximación a su utilización. Avances en Medición. 2008; 6:27-36.
- Carretero-Dios H, Pérez C, Granada U De. Normas para el desarrollo y revisión de estudios instrumentales. Int J od Clin Heal Psychol. 2005; 5(Estadística): 521-51.
- Prieto L, Badía X. Cuestionarios de salud: concepto y metodología. Aten Primaria. 2001; 28(3):201-9.
- Badía X. Cuestionarios de salud en España y su uso en atención primaria. Aten Primaria. 2001; 28:349-56.
- Lawshe CH. A quantitative approach to content validity. Pers Psychol 1975; 28(4):563-75.
- Ayre C, Scally AJ. Critical Values for Lawshe’s Content Validity Ratio: Revisiting the Original Methods of Calculation. Meas Eval Couns Dev (Sage Publ Inc). 2014; 47(1):79-86.
- Badia X, Baró E. Cuestionarios de salud en España y su uso en Atención Primaria. Aten Primaria [internet]. 2001 [citado 8 jun 2020]; 28(5):349-56. Disponible en: http://linkinghub.elsevier.com/retrieve/pii/S0212656701703873
- Vallejo PM. El análisis factorial en la construcción e interpretación de tests, escalas y cuestionarios. Univ Pontif Comillas, Madrid [internet]. 2011; (Última rev: 45) [citado 8 jun 2020]. Disponible en: http://www.upcomillas.es/personal/peter/investigacion/AnalisisFactorial.pdf
- Batista-Foguet JM, Coenders G, Alonso J. Confirmatory factor analysis. Its role on the validation of health related questionnaires]. Med Clin 2004; 122 Suppl(0025-7753 (Print)):21-7.
- Prieto L, Badía X. Cuestionarios de salud : concepto y metodología. Aten Primaria. 2001; 28(3):201-9.
- Garmendia ML. Análisis factorial: una aplicación en el cuestionario de salud general de Goldberg, versión de 12 preguntas*. Rev Chil Salud Pública. 2007; 11(2): 57-65.
- Kubsch SM. Conflict, enactment, empowerment: conditions of independent therapeutic nursing intervention. J Adv Nurs 1996; 23(1):192-200. Doi: http://dx.doi.org/10.1111/j.1365-2648.1996.tb03152.x
- McCarley P. Patient empowerment and motivational interviewing: engaging patients to self-manage their own care. Nephrol Nurs J. 2009; 36(4):409-13.