Authors

Claudia Curto Romeu1, Carme Ferré Grau2, Mª del Mar Lleixà Fortuño3, Ester Gavaldà Espelta4, Gerard Mora López2, Nuria Brunet Reverté5, Begoña Tomás Navarro5

Position

¹Licenciada. Equipo de Atención Primaria Amposta. Gerencia Territorial de les Terres de l’ Ebre. Institut Català de la Salut. Tarragona (España)²Doctor/a. Departamento de Enfermería. Programa de Doctorado Enfermería y Salud. Universidad Rovira i Virgili. Tarragona (España)³Doctora. Departamento de Enfermería. Programa de Doctorado Enfermería y Salud. Universidad Rovira i Virgili. Coordinadora territorial d'Igualtat i Feminismes. Generalitat de Catalunya. Tarragona (España)⁴Diplomada. Equipo de Atención Primaria Amposta. Gerencia Territorial de les Terres de l’ Ebre. Direcció d'Atenció Primaria Terres de l'Ebre. Tarragona (España)⁵Diplomada. Equipo de Atención Primaria Amposta. Gerencia Territorial de les Terres de l’ Ebre. Institut Català de la Salut. Tarragona (España)

Contact address

Claudia Curto Romeu. Camí Darrera Camp de Futbol, 27. 43590 Tortosa, Tarragona (España)

Abstract

Objectives: to understand the needs expressed by caregivers of patients with dementia regarding aspects of training, psychosocial support, solution of problems and training in skills. To design, implement and evaluate a community support program for caregivers of patients with dementia, which will improve their quality of life as caregivers and their caring experience.

Method: a mixed methodology study according to the Medical Research Council guidelines on evaluation of complex interventions, in three stages. Stage 1: Modelling and implementation of the intervention (qualitative). Stage 2: Quasi-experimental pre-post intervention study with measurements repeated before and after the intervention and at six months. Stage 3: Evaluation of the intervention program (qualitative).

The population object of the study are caregivers of non-institutionalized patients with diagnosis of dementia, with degree of dependence 1 or 2 or pending degree, in the Montsiá and Baix Ebre regions (Tarragona, Spain) in the Primary Care setting, for the 2020-2022 period.

Conclusions: to conduct a mixed methodology study from Primary Care and with collaboration by citizens will allow to design an intervention adapted to the reality of the study subjects. Its application could be relevant, because if the objectives are confirmed, this study would establish the basis for modifying the way to address caregivers and the support they must receive, by being initiated since patient diagnosis, reducing caregiver overload to a minimum, and improving their quality of life and social support.

Keywords:

dementia; Family caregivers; needs assessment; training programme; Alzheimer

Versión en Español

Título:

Efectividad de un programa comunitario de apoyo a cuidadores de pacientes con demencia: escuela del cuidar