Quality of life, role adoption and coping in caregivers for patients with heart failure

Section: Originals

How to quote

Vargas-Escobar LM, Gómez Tovar LO, Martínez Camargo SP, Roa Parada DA, Mayorga Palacios AP, Flórez Gutiérrez C, et al. Calidad de vida, adopción del rol y afrontamiento en personas cuidadoras de pacientes con insuficiencia cardiaca. Metas Enferm abr 2022; 25(3):17-25. Doi: https://doi.org/10.35667/MetasEnf.2022.25.1003081899

Authors

Lina María Vargas Escobar1, Luz Omaira Gómez Tovar2, Silvia Pilar Martínez Camargo3, Diana Alexandra Roa Parada3, Andrea del Pilar Mayorga Palacios4, Carolina Flórez Gutiérrez5, María Cilia Rincón Buenhombre3, Brayant Andrade Méndez2

Position

1Doctora en Enfermería. Universidad El Bosque. Bogotá D.C. (Colombia). Miembro de la Red de Investigación en Enfermedad Cardiovascular (RIECA) 2Magister en Enfermería. Universidad Surcolombiana. Neiva, Huila (Colombia). Miembro de la Red de Investigación en Enfermedad Cardiovascular (RIECA) 3Enfermera especialista. Fundación Clínica Shaio. Bogotá D.C. (Colombia). Miembro de la Red de Investigación en Enfermedad Cardiovascular (RIECA) 4Magister en Salud Pública. Universidad El Bosque. Bogotá D.C. (Colombia). Miembro de la Red de Investigación en Enfermedad Cardiovascular (RIECA) 5Magister en Docencia. Universidad El Bosque. Bogotá D.C. (Colombia). Miembro de la Red de Investigación en Enfermedad Cardiovascular (RIECA)

Contact address

Luz Omaira Gómez Tovar. Universidad Surcolombiana. Calle 9, 14-03. 410010 Neiva, Huila (Colombia)

Contact email: omaira.gomez@usco.edu.co

Abstract

Objective: the objective of this research was to describe the profile, the quality of life, the role adoption and the coping and adaptation of caregivers for persons with advanced heart failure (HF), managed at the “Day Hospital” programme of the Fundación Clínica Shaio of Bogotá, as well as to analyse the differences based on their sociodemographic characteristics.

Methodology: a descriptive cross-sectional study conducted in 2019. The study population were persons acting as caregivers for patients with Advanced HF (N= 128). Sociodemographic variables were measured, associated with care, role adoption, coping and adaptation, and quality of life. Descriptive and bivariate statistics were conducted.

Results: the study included 101 persons: 81.1% were women, with 51.2 years as mean age, 89.1% from urban areas, 70.2% with high school or university degree, and 81% were catholic; 47% were caregivers for their parents, and 70.4% had been doing this for more than one year. The quality of life was medium-high in the physical and psychological dimensions, medium-low in the social and spiritual dimensions. The ability for coping and adaptation was mostly medium (47.5%) and role adoption was found at basic level (medium) for the great majority (88.1%). Younger persons were better at coping and role adoption (mean age= 48 approximately), from rural areas, and those who spent less hours per day in caregiving, as well as those persons from low and high classes and with a high level of religious commitment.

Conclusion: the educational level and the time spent in caregiving was higher than in other settings. Coping and adopting strategies are needed, which will allow them to own their condition and improve the results obtained.

Keywords:

heart failure; caregivers; quality of life; psychological adaptation; chronic condition; Role; cross-sectional studies

Versión en Español

Título:

Calidad de vida, adopción del rol y afrontamiento en personas cuidadoras de pacientes con insuficiencia cardiaca